RESILIENCE OF CHRONICALLY ILL: A SCOPING REVIEW
DOI:
https://doi.org/10.17770/sie2021vol7.6176Keywords:
patients with chronic illness, qualitative study, resilience, strategies, scoping reviewAbstract
In the field of psychology resilience of the chronically ill has been studied mostly using quantitative research methods, but there are much fewer qualitative studies. This scoping review aims to collect definitions of resilience, find out, whether resilience development strategies are mentioned and what research approaches are used in qualitative studies about the resilience of the chronically ill. The review was conducted, following the 5-stage framework by Arksey and O’Malley, PRISMA guidelines, and searching in PubMed, PsychInfo, and Scopus databases. The main keywords (patients with chronic illness, resilience, strategies, qualitative studies) were selected according to the Participants/Concept/Context (PCC) framework, 21 articles were included in the review. Resilience mostly was defined as the ability to recover, return to normality, and adapt to new conditions after experiencing stress, illness, or other negative events. In several studies, other terms like coping, personal strength, self-management, and psychological growth were used instead. Lived experiences of the chronically ill show that resilience is not a stable ability, it changes over time. Resilience can be developed, using different strategies, such as having a positive mindset, learning new skills, accepting help, or promoting a healthy lifestyle. Qualitative content analysis and thematic analysis were the most often used research approaches in qualitative studies about the resilience of the chronically ill.
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References
Arksey, H., & O'Malley, L. (2005). Scoping studies: towards a methodological framework. International Journal of Social Research Methodology, 8(1), 19–32. DOI: https://doi.org/10.1080/1364557032000119616
Bodin, P., & Wiman, B. (2004). Resilience and other stability concepts in ecology: Notes on their origin, validity, and usefulness. ESS Bulletin, 2, 33– 43. Retrieved from https://www.researchgate.net/publication/236208772_Resilience_and_Other_Stability_Concepts_in_Ecology_Notes_on_their_Origin_Validity_and_Usefulness
Bonanno, G. A. (2004). Loss, trauma, and human resilience: Have we underestimated the human capacity to thrive after extremely aversive events? American Psychologist, 59(1), 20-28. DOI: https://doi.org /10.1037/0003-066X.59.1.20
Bonanno, G. A., & Mancini, A. D. (2008). The human capacity to thrive in the face of potential trauma. Pediatrics, 121(2), 369–75. DOI: https://doi.org/10.1542/peds.2007-1648
Deveson A. (2003). Resilience. Crows Nest, N.S.W: Allen & Unwin.
Geard, A., Kirkevold, M., Løvstad, M., & Schanke, A. K. (2018). Exploring narratives of resilience among seven males living with spinal cord injury: a qualitative study. BMC Psychology, 6(1). DOI: https://doi.org/10.1186/s40359-017-0211-2
Gheshlagh, R. E., Sayehmiri, K., Ebadi, A., Dalvandi, A., Dalvand, S., & Tabrizi, K.N. (2016). Resilience of patients with chronic physical diseases: A systematic review and meta-analysis. Iranian Red Crescent Medical Journal, 18(7). DOI: https://doi.org /10.5812/ircmj.38562
Gonzalez, P., Nuñez, A., Wang-Letzkus, M., Lim, J., Flores, K., & Napoles, A. M. (2015). Coping with breast cancer: Reflections from Chinese American, Korean American, and Mexican American women. Health Psychology, 35(1), 19-28. DOI: https://doi.org/10.1037/hea0000263
Harrop, E., Noble, S., Edwards, M., Sivell, S., Moore, B., & Nelson A. (2017). Managing, making sense of and finding meaning in advanced illness: A qualitative exploration of the coping and wellbeing experiences of patients with lung cancer. Sociology of Health and Illness, 39(8), 1448-1464. DOI: https://doi.org/10.1111/1467-9566.12601
Moher, D., Liberati, A., Tetzlaff, J., & Altman, D. G. (The PRISMA Group) (2009). Preferred reporting items for systematic reviews and metaanalyses: The PRISMA statement. Open Medicine, 3(2),123-130. DOI: https://doi.org /10.1016/j.jclinepi.2009.06.005
Oaksford, K., Frude, N., & Cuddihy, R. (2005). Positive coping and stress-related psychological growth following lower limb amputation. Rehabilitation Psychology, 50(3), 266–277. DOI: https://doi.org/10.1037/0090-5550.50.3.266
Rutter, M. (1985). Resilience in the face of adversity. Protective factors and resistance to psychiatric disorder. The British Journal of Psychiatry, 147(6), 598–611. DOI: https://doi.org/10.1192/bjp.147.6.598
Santis, J. P., Florom-Smith, A., Vermeesch, A., Barroso, S., & DeLeon, D. (2013). Motivation, management, and mastery: A theory of resilience in the context of HIV infection. Journal of the American Psychiatric Nurses Association, 19(1), 36-46. DOI: https://doi.org/10.1177/1078390312474096
Shauver, M. S., Aravind, M. S., & Chung K. C. (2012). A qualitative study of recovery from type III-B and III-C tibial fractures. Annals of Plastic Surgery, 66(1), 73–79. DOI: https://doi.org/10.1097/SAP.0b013e3181d50eba
Smith, B. (2013). Disability, sport and men’s narratives of health: A qualitative study. Health Psychology, 32(1), 110-119. DOI: https://doi.org/10.1037/a0029187
Solano, J. P. C., Da Silva, A. G., Soares, I .A., Ashmai, H .A., & Vieira, J. E. (2016). Resilience and hope during advanced disease: A pilot study with metastatic colorectal cancer patients. BMC Palliative Care, 15(1),70. DOI: https://doi.org /10.1186/s12904-016-0139-y
Stevelink, S. A. M., Malcolm, E. M., & Fear, N. T. (2015). Visual impairment, coping strategies and impact on daily life: A qualitative study among working-age UK ex-service personnel. BMC Public Health, 15, 1118. DOI: https://doi.org/10.1186/s12889-015-2455-1
Walshe, C., Roberts, D., Appleton, L., Calman, L., Large, P., Lloyd-Williams, M., & Grande, G. (2017). Coping well with advanced cancer: A serial qualitative interview study with patients and family carers. PloS one, 12(1). DOI: https://doi.org/10.1371/journal.pone.0169071
Wilson, A. L., McNaughton, D., Meyer, S. B., & Ward, P. R. (2017). Understanding the links between resilience and type-2 diabetes self-management: A qualitative study in South Australia. Archives of Public Health, 75(1). DOI: https://doi.org/10.1186/s13690-017-0222-8
Yu-Ri, L., Ju-Yeon, L., Jae-Min, K., Il-Seon, S., Jin-Sang, Y., & Sung-Wan, K. (2019). A comparative study of burnout, stress and resilience among emotional workers. Psychiatry Investigation, 16(9), 686-694. DOI: https://doi.org/10.30773/pi.2019.07.10
